Showing posts with label celiac. Show all posts
Showing posts with label celiac. Show all posts
Wednesday, July 27, 2011
The Quest for Bread
Here are some things I’ve learned about gluten-free products:
Pasta - I like the quinoa and corn better than the rice-based noodles. Ancient Harvest spaghetti is my favorite so far. They don’t have too many shapes so I haven’t been able to try the other varieties. I have elbow noodles in my cupboard but haven’t used them yet. The next best is Annie’s macaroni and cheese. It’s nearly as good as regular boxed mac-n-cheese, despite being rice-based noodles. They’re much larger in size than the typical blue box but they taste great and hold their texture as leftovers. My least favorite is Tinkyada. Maybe it’s just their asinine “energy-saving” cooking method (boil for 2 minutes then let sit, covered, for 20) but the texture was awful, they fell apart when mixed with other ingredients, they were mushy in the casserole, and worse as leftovers. We threw out half a pan.
Snacks & Desserts - I haven’t actually tried that many crackers. The Glutino table crackers are underwhelming so I’ve been sticking with Nut Thins. I genuinely like them and I keep trying new flavors. They’re really great with spreadable cheeses like port wine and cream cheese. Tortilla chips are of course a standard, as they have been all along. Frito Lay has a marvelous list of all their GF snacks, which include Cheetos! Unfortunately not Nacho Cheese Doritos; Cool Ranch just aren’t as good. I’ve also tried a few different bars. Bakery on Main has some nice granola bars and I like that you can actually buy a whole box. KIND bars and Lärabars are individual only. I was underwhelmed with the one flavor of KIND bar I’ve tried but plan to sample others. So far I like the chocolate coconut Lärabar best but it’s only the second flavor I’ve gotten around to sampling. I made some homemade Monster Cookies using a recipe from General Mills’ glutenfreely.com. They used a box mix for Betty Crocker GF chocolate chip cookies. The finished product was OK, not great. They were actually better the second day but then got quite dry as they aged. I do like the idea of using more baking mixes though, instead of having to have 80 different weird flours on hand. A co-worker brought in a French Meadow GF brownie and a GF chocolate chip cookie for me earlier this week. They were both good but the cookie was actually pretty great. I’ve also had the local co-op’s GF brownie, which I liked though it was day old and so a bit stale.
Breakfast - Mostly I’ve been eating Corn Chex or Rice Chex. Or combining them into the same bowl for “Crispix”. I’ve tried one actual GF cereal, Sunrise Harvest, and it was good but weird. There were like six different shapes of things in there so it was like eating suicide cereal. Seriously. Like if someone poured Kix and Rice Krispies and Wheaties and Grape Nuts and Special K into the same bowl and mixed it all together. Odd. I’ve also gone through a box of Glutenfreeda instant oatmeal. I tried the variety pack which had apple-cinnamon, maple-raisin, and maple-banana. The maple-banana is best. But I would like to find just regular instant oats. Like a big container that I can choose how much to pour and flavor myself instead of the packets. I’m also curious about the quinoa flakes (like Malt-o-Meal?) but haven’t tried them yet. I have some actual quinoa that I used to make a delicious pilaf the other night. I think I have a recipe to make a hearty breakfast bowl with quinoa that I’ll have to dig up. I’ve also been buying Amy’s frozen GF burritos, which are awesome, and having those for brekkie. But that gets spendy.
Pizza - Pizza has been tricky. Mr. b found an Amy’s frozen rice crust pizza and it was awful. The flavor was ok I guess but the texture was all kinds of wrong. We threw out the leftovers. Since that disaster, I tried an Udi’s frozen pizza crust. It was great. Good texture, good flavor, and really only a little bit more effort to have to spread my own sauce and toppings. It was a two-pack so I’ve got a second one to decorate. They’re fairly small crusts though so I can eat like 2/3 myself. Something for a night when the kids are having Spaghettios. We had a pizza lunch at work the other day and the admin was kind enough to order several GF along with the massive order she called in from Pizza Luce. It was great. I even got to snatch the leftovers so I’ve had some leftover pizza for breakfast. There are a couple of other pizza joints I want to try that have GF crusts. It’s nice living in such a hippie organic bean sprout city because there really are a lot of restaurant options. I just need to remember all the places we used to go back in the 90s…
Bread - This is the biggie. I haven’t found anything that’s *that* good yet. Udi’s plain bagels were fine. They weren’t great but they were acceptable. I’m a bagel snob and nothing is ever going to compare to Bruegger’s for me so I just have to accept that. Udi’s were as good as non-Bruegger’s and that’s as good as it’s going to get. I also tried some brown rice tortillas. They were pretty passable as naan for scooping up Indian food. But they didn’t wrap well for burritos. I haven’t tried them as quesadillas yet but my fingers are crossed. Corn tortillas, though good for pretty much anything (seriously, I eat most leftovers in them; you can make anything into a taco), just don’t work for quesadillas. Regular bread though, haven’t hit on it yet. First I tried a loaf of Schär. The first two sandwiches I made for Mr. b and I – grilled ham and cheese – were excellent. But small. The loaf is little. But after it was frozen and I had to defrost in the microwave I was completely disillusioned. I choked down my grilled cheese and figured I’d have to try another brand. So next up was French Meadow. They’re local and their tag line is that it’s so good you won’t miss the wheat. Bullshit. I missed the wheat. It was not good. I choked down the tuna melt but was very unhappy. Then I decided to try toasting the old frozen Schär in the oven. It’s a bit weird and slow but it was good! I had it with cream cheese and it was better than the bagel. I tried the same oven technique with the French Meadow and again, it totally worked! My salami and provolone sandwich was dry but delicious. So I guess toasting is the key. I still want to try Udi’s and see if that’s universal but I suspect it is. I covet the soft pillowy direct-from-the bag slices when I make the kids’ PBJs. And croissants. I haven’t even attempted a hunt for GF croissants.
Friday, July 22, 2011
It's Genetic
Good News Everyone! Kirk and Veronica do NOT have celiac disease.
I took them in last week to have blood taken for testing. Since it's genetic, they say that anyone with a confirmed-by-endoscopy diagnosis (me!) should have their first degree relatives tested. My parents and my siblings will have to take care of themselves. My kids are cleared. And they were so well-behaved at the lab that they got taken off grounding for the running away from home incident.
It’s a big relief to know they don’t have it. I mean, I know it must be easier to deal with than parents of young kids that aren’t actually celiac themselves. I already am learning the ways of gluten-free living. But this way they don’t have to worry about getting contaminated out there in the world, at daycare or school or birthday parties or hell, even taking samples in the grocery store. It’s just simpler. And I was worried. Not about Kirk. I was quite confident he’d be cleared. But Ronnie’s always had a poopie butt. She has blows outs even still and her poo just isn’t as solidified as her brother’s was coming into potty training age. So it’s good to know that’s just her system, and not an underlying issue.
My mom and I wonder if perhaps her father didn’t have celiac. He died when I was less than a year old so I don’t have any memory of him. But Mom says that Grandpa was always, her entire life, experimenting with his diet to try to solve his constant digestive issues. And since gluten wasn’t determined as the cause of celiac disease until WWII, and even then it wasn’t common knowledge outside of specialists in Europe, I can see it being highly unlikely that he would have stumbled upon eliminating wheat from his diet as a cure. I must admit, it’s kind of neat having a speculative link to a man I’ll never know.
I took them in last week to have blood taken for testing. Since it's genetic, they say that anyone with a confirmed-by-endoscopy diagnosis (me!) should have their first degree relatives tested. My parents and my siblings will have to take care of themselves. My kids are cleared. And they were so well-behaved at the lab that they got taken off grounding for the running away from home incident.
It’s a big relief to know they don’t have it. I mean, I know it must be easier to deal with than parents of young kids that aren’t actually celiac themselves. I already am learning the ways of gluten-free living. But this way they don’t have to worry about getting contaminated out there in the world, at daycare or school or birthday parties or hell, even taking samples in the grocery store. It’s just simpler. And I was worried. Not about Kirk. I was quite confident he’d be cleared. But Ronnie’s always had a poopie butt. She has blows outs even still and her poo just isn’t as solidified as her brother’s was coming into potty training age. So it’s good to know that’s just her system, and not an underlying issue.
My mom and I wonder if perhaps her father didn’t have celiac. He died when I was less than a year old so I don’t have any memory of him. But Mom says that Grandpa was always, her entire life, experimenting with his diet to try to solve his constant digestive issues. And since gluten wasn’t determined as the cause of celiac disease until WWII, and even then it wasn’t common knowledge outside of specialists in Europe, I can see it being highly unlikely that he would have stumbled upon eliminating wheat from his diet as a cure. I must admit, it’s kind of neat having a speculative link to a man I’ll never know.
Tuesday, July 12, 2011
Poison!
Saturday we took Kirk to see the King Tut exhibit at the Science Museum. He loved it. Of course. We looked at some of the other permanent exhibits, mainly the dinosaurs, and played out in the Big Backyard and by that time, it was nearly 7 o’clock. The snacks I had packed us all were quickly devoured in the car so Mr. b and I thought we’d hit a drive-thru. Taco Bell seemed easiest. Little did I know it was about to be a gluten fiesta.
Taco Bell has gluten in everything. I am not making this up. There’s wheat in the Fire sauce. In the meat for the corn shell tacos. Even the frickin’ mango strawberry Fruitista Freeze has it! I was shocked. And...had already started eating by the time I made this discovery. I said fuck it and kept eating. Mr. b figures it was my chance to say good bye to Taco Bell. But then I had to wait for the sick to kick in. I knew it would be about a day and a half delay to get deep enough into my guts to do damage.
I knew it would take that long because last week I got “poisoned” by toaster crumbs. I made myself a gluten-free bagel and used our regular toaster, not thinking anything of it. I met with the dietician that afternoon and found out: Bad Idea. Apparently I need to get my own toaster. I’ve been toasting my bagels in a dry frying pan in the meantime. Now that the gluten is out of my system and my intestines are beginning to heal, even the smallest amount will make me sick. But it took about 30 hours to hit. It wasn’t until following afternoon that I started to feel icky and needed to run to the bathroom repeatedly. I guess each instance will be different though because the Taco Bell fiasco manifested as gas and bloating instead. I’m keeping up my food log so at least I’ll be able to track the culprits now that I have a general timeline. Hopefully that’ll help me fine tune this radical diet change.
Taco Bell has gluten in everything. I am not making this up. There’s wheat in the Fire sauce. In the meat for the corn shell tacos. Even the frickin’ mango strawberry Fruitista Freeze has it! I was shocked. And...had already started eating by the time I made this discovery. I said fuck it and kept eating. Mr. b figures it was my chance to say good bye to Taco Bell. But then I had to wait for the sick to kick in. I knew it would be about a day and a half delay to get deep enough into my guts to do damage.
I knew it would take that long because last week I got “poisoned” by toaster crumbs. I made myself a gluten-free bagel and used our regular toaster, not thinking anything of it. I met with the dietician that afternoon and found out: Bad Idea. Apparently I need to get my own toaster. I’ve been toasting my bagels in a dry frying pan in the meantime. Now that the gluten is out of my system and my intestines are beginning to heal, even the smallest amount will make me sick. But it took about 30 hours to hit. It wasn’t until following afternoon that I started to feel icky and needed to run to the bathroom repeatedly. I guess each instance will be different though because the Taco Bell fiasco manifested as gas and bloating instead. I’m keeping up my food log so at least I’ll be able to track the culprits now that I have a general timeline. Hopefully that’ll help me fine tune this radical diet change.
Tuesday, July 05, 2011
I Miss Carbs
I’m having a hard time adjusting to the lack of carbohydrates in my diet. I’m a carb kind of gal and I’m noticing an increase in dizziness, floaters in my vision, headaches, and other things like that. Things that I’ve long associated with low blood sugar. That I used to be able to take care of by just eating a granola bar or some peanut butter toast. Now I’m filling myself with cheap carbs like soda and potato chips. Just to try to feel full for a minute. But it never lasts. No matter how much protein I try to add. My meeting with the medical nutritionist is tomorrow.
Yes, the celiac diagnosis is official. I briefly met with the GI docs again last week. Basically the diagnosis is two-fold: outright celiac disease and a bunch of medical bullshit that boils down to “manifestation of celiac disease”. I’ve been doing the gluten-free thing, more or less, for two weeks now and I’ve definitely noticed a difference…in my poop. I’m very excited that I’m no longer having daily diarrhea. I keep joking that the only time you’re excited about poop is with your infant, or if you’ve had diarrhea for four months.
I haven’t noticed any other differences yet. I’m exhausted but that’s likely from a non-stop weekend of Kirk’s birthday party, my dad’s BBQ reunion, and blowing shit up with neighbors in the alley. I’m supposed to keep taking my daily iron supplement for the next couple of months before trying to cut that off and see if I still need it. Other than that, I don’t know what else to look for.
I’m trying to keep track of what I’m eating so I can tell what makes me sick. Apparently very small amounts of gluten will have a big effect once I’ve fully transitioned. I had icky poo again two mornings in a row, once after Red Lobster and once after homemade gluten-free macaroni and cheese. Initially I thought maybe there was cross-contamination in my steak and baked potato. I tried to be careful with what I ordered at the restaurant. But then when I felt icky the second morning I looked to rum as the potential culprit – I had a Bahama Mama while out and a glass of homemade rum punch the following night. Mr. b told me to try rum a third time before cutting it out and sure enough, that wasn’t a problem. So now I’m back to wondering about cross-contamination and reviewing my food log to see what might have been the issue the second time.
Meanwhile, I’m not sure I like gluten-free bread. We bought a loaf of Schär multi-grain last week and I made us some grilled ham and cheese sandwiches. Both Mr. b and I liked them a lot. But when I made myself a grilled cheese this weekend, it wasn’t very good. The bread has to be used very quickly or else frozen so I’m thinking the defrosting and then grilling was the problem. We’ll see if I can come up with another method of cooking it. I found a double corn tortilla to be a very excellent substitute for a hot dog bun!
Yes, the celiac diagnosis is official. I briefly met with the GI docs again last week. Basically the diagnosis is two-fold: outright celiac disease and a bunch of medical bullshit that boils down to “manifestation of celiac disease”. I’ve been doing the gluten-free thing, more or less, for two weeks now and I’ve definitely noticed a difference…in my poop. I’m very excited that I’m no longer having daily diarrhea. I keep joking that the only time you’re excited about poop is with your infant, or if you’ve had diarrhea for four months.
I haven’t noticed any other differences yet. I’m exhausted but that’s likely from a non-stop weekend of Kirk’s birthday party, my dad’s BBQ reunion, and blowing shit up with neighbors in the alley. I’m supposed to keep taking my daily iron supplement for the next couple of months before trying to cut that off and see if I still need it. Other than that, I don’t know what else to look for.
I’m trying to keep track of what I’m eating so I can tell what makes me sick. Apparently very small amounts of gluten will have a big effect once I’ve fully transitioned. I had icky poo again two mornings in a row, once after Red Lobster and once after homemade gluten-free macaroni and cheese. Initially I thought maybe there was cross-contamination in my steak and baked potato. I tried to be careful with what I ordered at the restaurant. But then when I felt icky the second morning I looked to rum as the potential culprit – I had a Bahama Mama while out and a glass of homemade rum punch the following night. Mr. b told me to try rum a third time before cutting it out and sure enough, that wasn’t a problem. So now I’m back to wondering about cross-contamination and reviewing my food log to see what might have been the issue the second time.
Meanwhile, I’m not sure I like gluten-free bread. We bought a loaf of Schär multi-grain last week and I made us some grilled ham and cheese sandwiches. Both Mr. b and I liked them a lot. But when I made myself a grilled cheese this weekend, it wasn’t very good. The bread has to be used very quickly or else frozen so I’m thinking the defrosting and then grilling was the problem. We’ll see if I can come up with another method of cooking it. I found a double corn tortilla to be a very excellent substitute for a hot dog bun!
Monday, June 27, 2011
Gluten-Free
My wrist is bruised from where the IV was in. It was really sore yesterday. I have my follow-up with the GI docs tomorrow so I’ll ask them about that. I never did get a call about the biopsy results so theoretically I’ll find that out tomorrow, too.
We’re starting slow with the gluten-free foods. Our usual grocery store has a small section in the hippie aisle. We taste-tested two different spaghettis, one was quinoa/corn and the other was corn/rice. The whole family liked both, which was a relief. It definitely cooked differently than regular semolina wheat spaghetti, and the texture of the leftover noodles is different, but in both cases it wasn’t bad, merely not what I’m used to.
I’m not ready to dive headlong into gluten-free baking. The idea that I’m going to need a half dozen different flours and combine them in various ways with xanthum gum and other stuff is just too daunting. I’ve got a loaf of gf bread and we’ll see how that tastes. I’m planning on mostly rice and potatoes for starches for meals this week. And there’s always corn tortillas.
So far, I’m just winging it. Cutting out the obvious wheat/rye/barley. And I’m staying away from oats until my system is cleared, then I’ll try them to see if they affect me or not. I’m not worrying about the celluloses and glutamates and dextroses and maltoses and whatnot. I know some are wheat based and some are corn based and frankly the internet is just overwhelming. I’m meeting with a nutritionist next week. I’ll ask for a list of what’s OK and what’s bad then. I figure the trace amounts of gluten in various derivatives isn’t going to be enough to set me off since I’m not 100% gluten-free yet. I know some people can get sick from one crumb but I haven’t been at this for even a full week yet. And I cheated last Friday, having one last sandwich from the deli at work, just to say goodbye. *sniff* I’ll miss you, delicious deli sammiches.
We’re starting slow with the gluten-free foods. Our usual grocery store has a small section in the hippie aisle. We taste-tested two different spaghettis, one was quinoa/corn and the other was corn/rice. The whole family liked both, which was a relief. It definitely cooked differently than regular semolina wheat spaghetti, and the texture of the leftover noodles is different, but in both cases it wasn’t bad, merely not what I’m used to.
I’m not ready to dive headlong into gluten-free baking. The idea that I’m going to need a half dozen different flours and combine them in various ways with xanthum gum and other stuff is just too daunting. I’ve got a loaf of gf bread and we’ll see how that tastes. I’m planning on mostly rice and potatoes for starches for meals this week. And there’s always corn tortillas.
So far, I’m just winging it. Cutting out the obvious wheat/rye/barley. And I’m staying away from oats until my system is cleared, then I’ll try them to see if they affect me or not. I’m not worrying about the celluloses and glutamates and dextroses and maltoses and whatnot. I know some are wheat based and some are corn based and frankly the internet is just overwhelming. I’m meeting with a nutritionist next week. I’ll ask for a list of what’s OK and what’s bad then. I figure the trace amounts of gluten in various derivatives isn’t going to be enough to set me off since I’m not 100% gluten-free yet. I know some people can get sick from one crumb but I haven’t been at this for even a full week yet. And I cheated last Friday, having one last sandwich from the deli at work, just to say goodbye. *sniff* I’ll miss you, delicious deli sammiches.
Thursday, June 23, 2011
Celiac
Last week I had my first appointment with the GI specialist. The doctor was handsome, very smart, and eager. He put together my history, like the flu in February and unexplained anemia since I was a teenager. The senior fellow came in (it’s the University so it’s a teaching hospital; I just thought it was funny that the “learner” himself is a full-fledged MD) and praised handsome doc for the job he did with the background analysis. Essentially they think I’ve pretty much always been celiac. In 10-15% of cases the only symptom that ever manifests is anemia so if I hadn’t had the triggering event of the viral infection, I possibly would never have known. Senior doc thought it was irresponsible of my past doctors to not look deeper but hey, it was over 20 years ago and they assumed it was puberty and starting to menstruate and all that and I’ve been taking iron for so long I just never think about it. He thinks that the mal-absorption of iron will go away with the other dietary changes, so that’ll be interesting. I wasn’t supposed to eliminate gluten yet though; they wanted me to wait until after the endoscopy. They expect that I’ll notice improvement in things I never noticed were affecting me before, like energy levels. When he asked if I’m often tired I joked that I have young kids, of course I’m tired!
I had my endoscopy yesterday. Because of a series of stupid events, I was over two hours early. (And hungry. I couldn’t eat anything after 7am.) I was fine in the waiting room but when they took me in to the prep room I started to freak out. The prep nurse explained to me step by step everything they were going to do and when she left to let me change into my hospital gown, I started crying. Yes, it’s PMS week so my emotions are nuts but I was still in tears. She came in and tried to help soothe me a bit and put in the IV shunt, which never felt right the entire time. I don’t remember it being so uncomfortable when I had them in for labor. But then again, I was in labor so a bit distracted. I had some time to read and text so that helped to keep my mind off of it but not completely.
Then they came to get me to the procedure room. There was a different nurse for that one and she was amazing. She tried to re-settle my IV and wrapped me up in hot blankets and did a fantastic job of helping to calm me. But I was still on the verge of bawling the whole time. They had warned me that the same senior doctor was always 15 minutes late. He ended up being an hour late. I just tried to close my eyes and doze off. It’s hard to actually sleep when there’s so much hustling and bustling in the hall outside and when your nerves are so on edge. Doctor finally got there and he’s a Tasmanian devil of humor and activity so I didn’t have time to freak out. He went through what they were going to do again and then he sprayed the back of my throat with basically just that lidocaine stuff the dentist uses; I had to swallow it though to get it down as far as possible. Meanwhile the nurse was injecting the narcotics and something else into my IV shunt. They hit me so fast. I felt woozy, like that spot *just before* you get the spins when you’re lying down after too many drinks. But it never got to the spins thankfully. I got another dose of the spray and another dose of the hippie drugs and they had me lying on my left side. Then I had to bite onto this circular bite guard thing and the doctor stuck the hose in my mouth. I had my eyes closed so I wouldn’t accidentally see it or the view screens from the camera. I had to swallow it and that was the hardest part. My gag reflex was tamed from the numbing spray but I still had to swallow three times to get it past. Then it was basically like being at the dentist, with the doctor giving the nurse instructions that meant nothing to me and she was doing stuff I couldn’t see and also rubbing my back and telling me how good I was doing and reminding me to breathe through my nose. Then the doctor said he was done and pulled the thing out. It took about 4 minutes. Then I had to spit out all the collected spittle (which obviously I couldn’t swallow with the thing down my throat) and they wheeled me to the recovery area to come down from the drugs.
My sister came in and I could barely follow along with her usual pace of things. The recovery nurse had me drink some water to make sure I could swallow. I was super loopy from the “conscious sedation”, which they do because otherwise they’d have to have you on the breathing machine if you were knocked out fully. All I cared about was getting the dang IV thing removed because it was so uncomfortable. I can definitely understand why they don’t want you driving but I would have been able to take the bus by myself. But they don’t have any way of knowing that I’m an expert bus taker. So. I was mostly down from the drugs by the time we got home and then I was just starving and tired. I went to bed at 8:30 last night.
The doctor came in while I was in recovery to talk about what he saw. He took biopsies of a couple different spots, in my stomach and duodenum, and will call me tomorrow with the results. But he said that if it’s not positive for celiac then he’s a liar. Which is why I have to start my new diet right away. I have to make an appointment with the nutritionist, too. We haven’t done any gluten-free shopping yet, and can’t until pay day, so I’m making due with what’s on hand. Which is mainly corn tortillas.
I had my endoscopy yesterday. Because of a series of stupid events, I was over two hours early. (And hungry. I couldn’t eat anything after 7am.) I was fine in the waiting room but when they took me in to the prep room I started to freak out. The prep nurse explained to me step by step everything they were going to do and when she left to let me change into my hospital gown, I started crying. Yes, it’s PMS week so my emotions are nuts but I was still in tears. She came in and tried to help soothe me a bit and put in the IV shunt, which never felt right the entire time. I don’t remember it being so uncomfortable when I had them in for labor. But then again, I was in labor so a bit distracted. I had some time to read and text so that helped to keep my mind off of it but not completely.
Then they came to get me to the procedure room. There was a different nurse for that one and she was amazing. She tried to re-settle my IV and wrapped me up in hot blankets and did a fantastic job of helping to calm me. But I was still on the verge of bawling the whole time. They had warned me that the same senior doctor was always 15 minutes late. He ended up being an hour late. I just tried to close my eyes and doze off. It’s hard to actually sleep when there’s so much hustling and bustling in the hall outside and when your nerves are so on edge. Doctor finally got there and he’s a Tasmanian devil of humor and activity so I didn’t have time to freak out. He went through what they were going to do again and then he sprayed the back of my throat with basically just that lidocaine stuff the dentist uses; I had to swallow it though to get it down as far as possible. Meanwhile the nurse was injecting the narcotics and something else into my IV shunt. They hit me so fast. I felt woozy, like that spot *just before* you get the spins when you’re lying down after too many drinks. But it never got to the spins thankfully. I got another dose of the spray and another dose of the hippie drugs and they had me lying on my left side. Then I had to bite onto this circular bite guard thing and the doctor stuck the hose in my mouth. I had my eyes closed so I wouldn’t accidentally see it or the view screens from the camera. I had to swallow it and that was the hardest part. My gag reflex was tamed from the numbing spray but I still had to swallow three times to get it past. Then it was basically like being at the dentist, with the doctor giving the nurse instructions that meant nothing to me and she was doing stuff I couldn’t see and also rubbing my back and telling me how good I was doing and reminding me to breathe through my nose. Then the doctor said he was done and pulled the thing out. It took about 4 minutes. Then I had to spit out all the collected spittle (which obviously I couldn’t swallow with the thing down my throat) and they wheeled me to the recovery area to come down from the drugs.
My sister came in and I could barely follow along with her usual pace of things. The recovery nurse had me drink some water to make sure I could swallow. I was super loopy from the “conscious sedation”, which they do because otherwise they’d have to have you on the breathing machine if you were knocked out fully. All I cared about was getting the dang IV thing removed because it was so uncomfortable. I can definitely understand why they don’t want you driving but I would have been able to take the bus by myself. But they don’t have any way of knowing that I’m an expert bus taker. So. I was mostly down from the drugs by the time we got home and then I was just starving and tired. I went to bed at 8:30 last night.
The doctor came in while I was in recovery to talk about what he saw. He took biopsies of a couple different spots, in my stomach and duodenum, and will call me tomorrow with the results. But he said that if it’s not positive for celiac then he’s a liar. Which is why I have to start my new diet right away. I have to make an appointment with the nutritionist, too. We haven’t done any gluten-free shopping yet, and can’t until pay day, so I’m making due with what’s on hand. Which is mainly corn tortillas.
Monday, May 16, 2011
Butt Update
Last week Ronnie started wearing underpants. Now, this does not mean she is fully potty trained. In fact, I would say instead that she is merely in the process of potty training. She still has accidents. Lots and lots of accidents. But for her, just wearing panties is enough to make her remember to use the potty and she really, really hates having to wear a diaper at all now.
It’s amazing how different the potty training experience is with Veronica compared to her brother. Kirk was just uninterested in it at all. Pure laziness. He would have kept going in a diaper forever if we would have let him. Which is why we started the sticker charts. Potty candy was all well and good but ultimately, he needed a bigger reward. Earning stickers to save up for a toy prize mattered a whole lot more to him than the personal pride of a pair of underpants. I guess that’s why Ronnie’s moving forward so much quicker and at such a younger age. I’m not sure if it’s the younger sibling thing or the girls-train-earlier-than-boys thing or personality differences or some combination of all of that. But it’s definitely been unique.
Kirk always used the actual potty chair. He didn’t switch to the potty ring until he had been using the little chair for quite some time. We’d always have to clean it out and it was gross. Ronnie has never used anything but the toilet seat ring insert. When she was first showing interest many months ago, I pulled the potty chair out and she would sit on it but it was basically just a toy. She didn’t start actually going until I set her on the ring. That’s what she uses at daycare, too.
So now I make sure she goes every morning when she first gets up. She’s really good at morning pee. The rest of the day is hit or miss. She’s been going to daycare in underpants but always ends up coming home in a diaper. She still needs one while sleeping so she needs one while taking a nap. Miss Ronica likes to then have her panties on top of her diaper, so she’s still wearing them. Sort of. I must say, size 2T Hello Kitty panties are just about the cutest thing ever.
Mama’s also been having increased potty focus the past few months. The entire family got hit with a nasty bout of stomach flu back in February. All four of us were down for several days with repeated puking and diarrhea. It was not fun. But after we all got well, my butt never went back to normal. Essentially, I’ve had intermittent diarrhea for months now. I thought maybe it was red meat so cut that out. I cut out alcohol and caffeine and dairy. None of that made any difference. I tried adding lactobacillus to my water. Nope. So I finally went to the doctor a couple of weeks ago and had blood taken and had to provide a stool sample. That was a real joy to collect.
Last week I got the results of the tests back. “Your blood tests for Celiac disease (gluten sensitivity) were both quite elevated. This makes the diagnosis quite likely.” Awesome. I have an appointment with a gastrointestinal specialist set up for next month. But in the meantime, I get to speculate on life with a possible celiac diagnosis. There is no cure. The only way to fix my butt issues would be to change my diet. Radically change my diet. Wheat gluten is in *everything*. Seriously. It’s used to thicken even ice cream! I love pasta and bread and crackers and cereal. Sure, my favorite grains have long been corn and oats but there’s wheat flour in corn bread and dieticians are divided on whether or not oat gluten is also bad. Basically it’s at the point now where every time I eat a sandwich or a plate of spaghetti I find myself thinking, “Is this the last time I’ll ever be able to eat it?” I’m not supposed to modify my diet on my own before additional testing or else I’d have to eat a bunch of gluten specifically for tests. So in the meantime, I’m keeping on keeping on.
But what will this mean for my family? I already have a massively picky eater in Kirk. Dinner is a fight more often than not. I don’t want to have to make special meals for myself but I also don’t want to have to force them to eat weird grains and bizarre recipes when they don’t have to. There are just so many factors and such a potential for ripple effects. I’m trying not to worry. But being celiac would certainly help to make sense of certain things my whole life so part of me would be happy just to have the answers. Even if that means knowing that I’ll pay later for that sandwich on delicious whole grain bread.
It’s amazing how different the potty training experience is with Veronica compared to her brother. Kirk was just uninterested in it at all. Pure laziness. He would have kept going in a diaper forever if we would have let him. Which is why we started the sticker charts. Potty candy was all well and good but ultimately, he needed a bigger reward. Earning stickers to save up for a toy prize mattered a whole lot more to him than the personal pride of a pair of underpants. I guess that’s why Ronnie’s moving forward so much quicker and at such a younger age. I’m not sure if it’s the younger sibling thing or the girls-train-earlier-than-boys thing or personality differences or some combination of all of that. But it’s definitely been unique.
Kirk always used the actual potty chair. He didn’t switch to the potty ring until he had been using the little chair for quite some time. We’d always have to clean it out and it was gross. Ronnie has never used anything but the toilet seat ring insert. When she was first showing interest many months ago, I pulled the potty chair out and she would sit on it but it was basically just a toy. She didn’t start actually going until I set her on the ring. That’s what she uses at daycare, too.
So now I make sure she goes every morning when she first gets up. She’s really good at morning pee. The rest of the day is hit or miss. She’s been going to daycare in underpants but always ends up coming home in a diaper. She still needs one while sleeping so she needs one while taking a nap. Miss Ronica likes to then have her panties on top of her diaper, so she’s still wearing them. Sort of. I must say, size 2T Hello Kitty panties are just about the cutest thing ever.
Mama’s also been having increased potty focus the past few months. The entire family got hit with a nasty bout of stomach flu back in February. All four of us were down for several days with repeated puking and diarrhea. It was not fun. But after we all got well, my butt never went back to normal. Essentially, I’ve had intermittent diarrhea for months now. I thought maybe it was red meat so cut that out. I cut out alcohol and caffeine and dairy. None of that made any difference. I tried adding lactobacillus to my water. Nope. So I finally went to the doctor a couple of weeks ago and had blood taken and had to provide a stool sample. That was a real joy to collect.
Last week I got the results of the tests back. “Your blood tests for Celiac disease (gluten sensitivity) were both quite elevated. This makes the diagnosis quite likely.” Awesome. I have an appointment with a gastrointestinal specialist set up for next month. But in the meantime, I get to speculate on life with a possible celiac diagnosis. There is no cure. The only way to fix my butt issues would be to change my diet. Radically change my diet. Wheat gluten is in *everything*. Seriously. It’s used to thicken even ice cream! I love pasta and bread and crackers and cereal. Sure, my favorite grains have long been corn and oats but there’s wheat flour in corn bread and dieticians are divided on whether or not oat gluten is also bad. Basically it’s at the point now where every time I eat a sandwich or a plate of spaghetti I find myself thinking, “Is this the last time I’ll ever be able to eat it?” I’m not supposed to modify my diet on my own before additional testing or else I’d have to eat a bunch of gluten specifically for tests. So in the meantime, I’m keeping on keeping on.
But what will this mean for my family? I already have a massively picky eater in Kirk. Dinner is a fight more often than not. I don’t want to have to make special meals for myself but I also don’t want to have to force them to eat weird grains and bizarre recipes when they don’t have to. There are just so many factors and such a potential for ripple effects. I’m trying not to worry. But being celiac would certainly help to make sense of certain things my whole life so part of me would be happy just to have the answers. Even if that means knowing that I’ll pay later for that sandwich on delicious whole grain bread.
Subscribe to:
Posts (Atom)
Posts
